Greengross A4D Global Arts for Brain Health Changemakers Conversation – Rare Dementia’s

Hear how inspirational people use creativity and learning to override symptoms of a rare dementia, preserve and advance active life.

More than 55 million people worldwide, 944,000 in the UK, of whom between 5% and 15% receive a diagnosis of a rare, inherited or young onset dementia. These conditions tend to occur at a younger age than Alzheimer’s disease, the most common cause of dementia, and can cause symptoms that are not only memory-related. These include difficulties with vision, language, movement and behavioural changes.

Rare Dementia Support UK provides support for seven rare dementias: Posterior cortical atrophy (PCA), Primary progressive aphasia (PPA), Frontotemporal dementia (FTD), Familial frontotemporal dementia (fFTD), Familial Alzheimer’s disease (FAD), Lewy body dementia (LBD), Young-onset Alzheimer’s disease (YOAD.)

As people living with Rare Dementias explained in our Young Onset Conversation in October, personal expression through creative activities, whether reviving or learning afresh, spending time in nature and with others, enables enduring sense of achievement, or hope, of connection.

This Conversation, chaired by Professor Sebastian Crutch, Professor of Neuropsychology at the Dementia Research Centre, UCL Institute of Neurology, will explain the neuroscience and present a range of research, lived experience and practice in the UK and America:

Who for?

If you work in the arts for health sector, are involved in rare dementia research or practice, innovative creative ageing, dementia prevention, social prescribing, are keen to discover new paths to preserve brain health, to enable people and their loved ones from the onset of dementia to live their best lives through creativity , join us for this key online conversation between world leaders in the field.

Cost: £6 (We prefer to offer our events free, but Eventbrite now charge us for this event and per ticket.)

Agenda + Speakers:

  • 4 pm H O S T : Veronica Franklin Gould, President, Arts 4 Dementia.
  • 4.05 C H A I R : Professor Sebastian Crutch, Professor of Neuropsychology at the Dementia Research Centre, UCL Institute of Neurology and is the clinical lead for Rare Dementia Support
  • 4.15 Charlie Harrison, Rare Dementia Support Creative Consultant, ‘Rare Space: Celebrating the creative and cultural lives of people affected by rare dementias
  • 4.25 Do you see what I see? film directed by Simon Ball for Created Out of Mind.
  • 4.30 Helena Clarke, artist living with Posterior Cortical Atrophy, choral singer, garden rewilder
  • 4.45 International perspective (speaker invited)
  • 5.00 Young onset and rare dementias from under-represented / minority community (speaker invited)
  • 5.05 Tony Thompson and Rebecca Goldstone, Co-directors, Sweet Patootee Arts
  • 5.15 Monica Boulton, Healthcare Integration Lead, National Academy for Social Prescribing
  • 5.40 Professor Sebastian Crutch, Rare Dementia Support, UCL.
  • 5.45 Veronica Franklin Gould, Close


Learn more and get tickets here!